Just five days to go before Botox treatment. Well, four, if you don’t count today, … or treatment day.
It won’t be pleasant, but I am ever hopeful that it will really have a positive impact on my condition.
I’m rather ‘betting the farm’ on Botox, because it has been used successfully as a treatment for Dystonia, with few side effects, for a long time. Hence my desire to stick with this, alone, rather than add in other pills and potions.
I can’t help thinking that other, more general, types of medication have a similar effect to throwing a pebble in a pond. A small ‘plop’, then the big ripples start. Obviously, I’m a trained neurologist (not) and so I can make these statements based on absolutely no knowledge whatsoever.
My neurologist gave me the ‘starter’ Botox dose, back in April. Then offered me additional medication in May. I picked up the prescription from the chemist, took it home, sat it on the kitchen table. And stared at it.
The side effects of these little pills were guarenteed memory loss and ‘feeling spaced out’. Not appealing on any front. And if you work as an accountant, ‘forgetting’ ain’t good. “Sorry, I forgot to pay all our suppliers this week and now there’s no electricity” are not words, I’d ever like to say.
So, the pills remain untaken. And life goes on.
My defence for defying the medical profession can be summarised in just two points:
- I’ve got my whole life to experiment with dystonia. It’s uncurable. So, unless your quality of life is being seriously impacted, don’t rush into things.
- I only had the starter dose of Botox and larger, routine dosings of this, may be all I need. But if I start taking other things before this routine is established, how will I know what is effective (or not)? And this lack of knowledge may doom me to a lifetime of inappropriate medication.
I hope my neurologist is reading this, then she might be less cross with me on Tuesday, as I’m sure she will be re: the pills. (“Difficult”, has probably already appeared on my medical records). But there are two opinions involved in Dystonia Girl’s care.
And one of them’s mine.
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